Validation of Persian Individualized Neuromuscular Quality of Life in patients with muscular dystrophies

Kamyar Moradi; Shirin  Jamal-Omidi; Maryam Masoudi1; Sayna Bagheri; Shahriar Nafissi; Farzad Fatehi

doi:10.18502/ijnl.v19i1.3284

Kamyar Moradi
Shirin Jamal-Omidi
Maryam Masoudi1
Sayna Bagheri
Shahriar Nafissi
Farzad Fatehi

DOI: https://doi.org/10.18502/ijnl.v19i1.3284

Keywords: Quality of Life; Neuromuscular Diseases; Surveys and Questionnaires; Validation Study; Persian

Abstract

Background: Neuromuscular disorders affect physical and mental aspects of a patient and in other words alter the patients’ quality of life (QOL). In the present study, we investigated the validity and reliability of the Persian version of Individualized Neuromuscular QOL (INQOL) to provide a better insight into patients’ QOL.

Methods: Original version of the INQOL was translated backward and then forward. The resultant Persian version and a standard questionnaire, 36-Item Short Form Health Survey (SF-36), were then given to 83 participants with neuromuscular disorders. Internal consistency, known-group validity, concurrent validity, and test-retest reliability were assessed.

Results: The scores of matched sections for QOL in the two questionnaires were favorably correlated (P < 0.05). Correlation between test and retest scores was also significant (P < 0.05). Moreover, the Cronbach’s alpha of 0.82 was representative of robust internal consistency between INQOL covering sections.

Conclusion: The Persian version of the INQOL can be used in clinical and research practice to detect changes in QOL which are related to neuromuscular disorders, due to its favorably reliable and valid characteristics.