Analyzing the health information needs of families with children suffering from cancer in the city of Yazd

Khalil Kalavani; Razieh Akhondzardaini

doi:10.18502/ijpho.v14i2.15270

Khalil Kalavani Student Research Committee, Faculty of Management and Medical Information Sciences, Kerman University of Medical Sciences, Kerman, Iran.
Razieh Akhondzardaini Faculty of Management and Medical Information Sciences, Kerman University of Medical Sciences, Kerman, Iran

DOI: https://doi.org/10.18502/ijpho.v14i2.15270

Keywords: Cancer, Family, Health, Information.

Abstract

Background: It is of paramount significance to address the needs of parents who have children with cancer. This research aims to analyze the health information needs of families with children suffering from cancer in Yazd city.

Materials and Methods: This descriptive-analytical study was conducted on a total of 248 individuals from families whose children underwent cancer treatment at Shahid Sadoughi Hospital in Yazd. The participants were selected through a non-random, purposeful, and voluntary sampling method. The data were collected using a comprehensive questionnaire consisting of 48 items. The data analysis was performed with the SPSS software version 25 and through t-tests, chi-square, ANOVA, and correlation analyses.

Result: Through a meticulous comparison of the scores obtained with a predetermined threshold of 3, all levels of information needs were satisfactorily met. However, it became evident that the parents needed more information to be given by the treatment staff regarding cancer and called for social, economic and spiritual support (p≤0.5). Moreover, the study identified and prioritized the information needs based on the average scores across the four examined factors. The highest-priority need was identified as “the information about cancer provided by the treatment staff"(2.99±0.7). The second most important need was found to be "social, economic and spiritual support"(2.98±0.7). The third priority was assigned to “the accessibility and exchange of relevant health information"(2.77±0.62). Lastly, the fourth priority pertained to"health facilities, services and counseling"(2.61±0.63). Furthermore, the independent t-test revealed that the average score on the total health information needs of the families with cancer-affected children was significantly higher for the women (140.5±20.4) than for the men (117.7± 11.55).

Conclusion: When handling children with cancer, it is crucial for the treatment staff to provide information about cancer and give social, economic and spiritual support in order to fully meet the information requirements of the families involved.